Wednesday, October 17, 2012

Ashlyn's Medical Update So Far

Ashlyn went to Tampa to see her ear doctor.  He finally took the inner ear packing out and it stayed out ( more ear drops).  But, we still have to keep her ear dry until Thanksgiving...ugh!  We have to start flushing it twice a day with the alcohol/vinegar mixture starting on Halloween.  Her ear doctor said "no way" to the submucous cleft palate surgery because he thinks she is outgrowing the ear problems, so we'll see how her ear does from here on out.  He wants us to get a hearing test done between Thanksgiving and Christmas to check if he was able to improve that, which he thinks he did.  Going to the doctor in Tampa has gotten bad with waiting.  Her appointment was at 11:30 and she did not see the doctor until 1:00 and had to rush back so she could go to choir.

On their way back on 192 in Kissimmee they witnessed an accident completely happen within feet from them.  There was a head on collision of an SUV with a motorcycle.  The SUV sped up to about 70 mph and crossed a small median into four motorcycles.  One motorcycle was able to avoid the car, but another one wasn't so lucky and the motorcycle was ripped to shreds and it was obvious that the motorcyclist was dead.  Poor Ashlyn witnessed this and of course they all came to a stop and as she watched, she said "Daddy, I think that guy is dead!"  She seems okay about it though, but I know she has some amazing coping mechanisms.

We got the MRI results in and everything looked normal.  This means that there is nothing wrong in her head that would have caused the precocious puberty and that the true cause is really "unknown."  But, the speculation, of course, is still that we tried to "catch her up" on her eating when we adopted her almost three years ago.  Not sure how you couldn't want to do that though.  I could wrap my fingers around her upper thigh and touch my fingers, she was so malnourished.  I guess they should have better literature in the adoption world about how an adoptive parent should go about feeding a child who is malnourished so that this could be avoided.

We are still waiting for the specialty pharmacy to call us to let us know that the insurance has approved the implant and they are sending it to our doctor's office.  I think I will try to call them today to see where they are with that.  I feel like we are wasting time!  All the results (blood and bone x-ray) state that she will be starting her cycle in 6 months were taken months ago (blood was 8 months ago and bone x-ray was 2 months ago).  I just hope we're not too late and we can slow this process down!


  1. Wow, lot's of stuff going on over there. I'm happy to hear that her ear is looking good. I'll be praying for you guys and the medicine for Ashlyn.

  2. It's simply amazing that a girl who has to go through this much medical stuff in her life ends up winning awards for being so loving to everybody. That's one GREAT granddaughter that we are sooooo lucky to have.

    Love you Ashlyn - Grandma and Grandpa Drago