We went to the pediatric cardiologist last Tuesday (February 1st) to get the ok for her going under anesthesia for 2-3 hours. While there, the EKG showed a premature beat and he wanted to do a 24 hour halter monitor to get a better idea of what is going on. He said we probably wouldn't get the report on that for one to two weeks, but thinks she should be ok to do the surgery.
We went to the ENT today. Ashlyn's bad ear has another serious infection and the ENT said she would be on antibiotic ear drops at least until she has surgery. We told him the bad news that we would be going over to Tampa to meet with an ear doctor (otologist) who is well known and highly recommended. The ENT said she might need up to four surgeries to get all the cholesteatoma and to put in artificial bones (he didn't see any bones, ossicles, in the CT Scan). He wasn't too happy about us going over to Tampa instead of using him, but he tried to be understanding about it. He seems like a good man, but it's hard when someone tells you that they don't want to use you because you want just an ear specialist and not an ear, nose, & throat specialist. If we don't get a good feeling from the Tampa group, then we will definitely fall back on him.
This is kind of scary for me...and we haven't even begun to tell Ashlyn what's going on. It's better to keep her happy go lucky until maybe the day before. We usually down play it too...we'll probably say something like, they're going to put you to sleep so they can get all the yucky out of your ear and get it better so that you can hear better. It usually seems to work with her.